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F the political gamesmanship from both sides, sickle cell anemia is an EXTREMELY painful disease and I feel for the young girl (or anyone) who suffers from it.
This wasn't the first time Pres. Obama helped a Make-A-Wish kid's dream come true. In November, 2009, he welcomed Jasmina Anema, who had leukemia, to the Oval Office.
Ryan Clark, Pittsburgh Steelers Safety, Sits Out Season Opener, Launches Sickle Cell Campaign
Jessica Cumberbatch Anderson | Sep 05, 2012 02:20 PM EDT
"The Pittsburgh Steelers will be one man short when they take the field for their season opener against the Denver Broncos this Sunday. Safety Ryan Clark is expected to sit out the first game in an effort to ward off symptoms of sickle cell, which have been known to flare up at Denver's low-oxygen, high-altitude Mile High Stadium. In fact, Clark nearly died the last time he played there, suffering a life-threatening "crisis" that ultimately cost him his gall bladder and his spleen.
But while he's sitting out for Sunday's game, Clark is standing up in the fight against sickle cell disease, announcing the launch of Ryan Clark’s Cure League during a press conference Tuesday.
The initiative aims to research and find a cure for the disease, a plight that is not only motivated by his own battle with the trait, but by the loss of his sister-in-law from it at the age of 27.
“Sickle cell is fatal,” Clark told CBS Pittsburgh. “My sister-in-law died at the age of 27, the year after I had my crisis. So this is important to me.”
According to the organizations website, Ryan Clark's Cure League, a partnership with the University of Pittsburgh and UPMC, raises money to fund sickle cell disease research, support patient care programs, and increase public awareness about the genetic blood disorder that is said to affect about one in 500 African-Americans in the U.S.
In this month's issue of WebMD the Magazine, actor Larenz Tate championed greater awareness of sickle cell disease and the importance of screening for the trait, which causes red blood cells to resemble sickles or crescents that can result in reduced blood flow, chronic fatigue and intense pain.
Alongside his brothers, Tate launched a similar initiative in 2004 to help raise awareness and research funding for children of color living with sickle cell anemia and sickle cell disease." http://www.huffingtonpost.com/2012/09/05/ryan-clark-pittsburgh-steelers-sickle-cell-campaign_n_1858822.html
“Sickle cell is fatal,” Clark told CBS Pittsburgh. "My sister-in-law died at the age of 27, the year after I had my crisis. So this is important to me.”
Sickle cell can be fatal, but it is not a terminal illness. It appears Make a Wish, whose CEO now makes over a half-million dollars a year, has gone from serving kids whose days are inexorably numbered, to including kids whose total number of days of life might be shortened by complications which may or may not occur at some undetermined future date. And serving such relatively lucky children, while scoring a publicity coup for an incumbent president fighting to keep his seat. A little strange, right before the election, and considering it's the Huffington Post publicizing the plight of a disease-stricken, but clearly not dying, child, it seems even stranger, and a bit sadder, for all the kids who are in their last days.
Gaye, that kids not dying and that's a problem for you? She's not sick enough to meet the president? Make a Wish is a corrupt boondoggle fleecing the dogooders in order to fatten up the CEO?
I think that's a pretty horrid outlook.
I have to agree on the blatant electioneering though. That's obvious. Guess they need a kid in a wheelchair with a bald cancer head next time. Maybe wearing an oversized trucker hat? Preferably a white kid. It just seem sadder when the kid is white, and it gets more votes that way too.
Comments (11)
Meanwhile, Paul Ryan breaks into a soup kitchen for a fake pot-scrubbing photo-op.
Posted by Allan L. | October 16, 2012 11:16 AM
Even more touching because of the juxtaposition of the Lincoln painting.
Posted by Langston | October 16, 2012 11:32 AM
Right before the election?
Posted by Anthony | October 16, 2012 11:43 AM
Meanwhilke, fringe left nutters are in a tizzy over their bogus fake pot scrubbing scam.
Posted by KJH | October 16, 2012 11:44 AM
F the political gamesmanship from both sides, sickle cell anemia is an EXTREMELY painful disease and I feel for the young girl (or anyone) who suffers from it.
Posted by john dull | October 16, 2012 12:20 PM
This wasn't the first time Pres. Obama helped a Make-A-Wish kid's dream come true. In November, 2009, he welcomed Jasmina Anema, who had leukemia, to the Oval Office.
http://articles.nydailynews.com/2009-12-04/news/17942177_1_president-obama-stricken-yo
Posted by Mag | October 16, 2012 1:18 PM
Thank you Jack for this feel gooder. We can all use lots more of that --anytime. and for you who want to politicize it -- c'mon, give us a break.....
Posted by OhYeah | October 16, 2012 3:46 PM
Ryan Clark, Pittsburgh Steelers Safety, Sits Out Season Opener, Launches Sickle Cell Campaign
Jessica Cumberbatch Anderson | Sep 05, 2012 02:20 PM EDT
"The Pittsburgh Steelers will be one man short when they take the field for their season opener against the Denver Broncos this Sunday. Safety Ryan Clark is expected to sit out the first game in an effort to ward off symptoms of sickle cell, which have been known to flare up at Denver's low-oxygen, high-altitude Mile High Stadium.
In fact, Clark nearly died the last time he played there, suffering a life-threatening "crisis" that ultimately cost him his gall bladder and his spleen.
But while he's sitting out for Sunday's game, Clark is standing up in the fight against sickle cell disease, announcing the launch of Ryan Clark’s Cure League during a press conference Tuesday.
The initiative aims to research and find a cure for the disease, a plight that is not only motivated by his own battle with the trait, but by the loss of his sister-in-law from it at the age of 27.
“Sickle cell is fatal,” Clark told CBS Pittsburgh. “My sister-in-law died at the age of 27, the year after I had my crisis. So this is important to me.”
According to the organizations website, Ryan Clark's Cure League, a partnership with the University of Pittsburgh and UPMC, raises money to fund sickle cell disease research, support patient care programs, and increase public awareness about the genetic blood disorder that is said to affect about one in 500 African-Americans in the U.S.
In this month's issue of WebMD the Magazine, actor Larenz Tate championed greater awareness of sickle cell disease and the importance of screening for the trait, which causes red blood cells to resemble sickles or crescents that can result in reduced blood flow, chronic fatigue and intense pain.
Alongside his brothers, Tate launched a similar initiative in 2004 to help raise awareness and research funding for children of color living with sickle cell anemia and sickle cell disease."
http://www.huffingtonpost.com/2012/09/05/ryan-clark-pittsburgh-steelers-sickle-cell-campaign_n_1858822.html
Posted by Mojo | October 16, 2012 4:05 PM
“Sickle cell is fatal,” Clark told CBS Pittsburgh. "My sister-in-law died at the age of 27, the year after I had my crisis. So this is important to me.”
Posted by Mojo | October 16, 2012 4:09 PM
Sickle cell can be fatal, but it is not a terminal illness. It appears Make a Wish, whose CEO now makes over a half-million dollars a year, has gone from serving kids whose days are inexorably numbered, to including kids whose total number of days of life might be shortened by complications which may or may not occur at some undetermined future date. And serving such relatively lucky children, while scoring a publicity coup for an incumbent president fighting to keep his seat. A little strange, right before the election, and considering it's the Huffington Post publicizing the plight of a disease-stricken, but clearly not dying, child, it seems even stranger, and a bit sadder, for all the kids who are in their last days.
Posted by Gaye Harris | October 16, 2012 8:10 PM
Gaye, that kids not dying and that's a problem for you? She's not sick enough to meet the president? Make a Wish is a corrupt boondoggle fleecing the dogooders in order to fatten up the CEO?
I think that's a pretty horrid outlook.
I have to agree on the blatant electioneering though. That's obvious. Guess they need a kid in a wheelchair with a bald cancer head next time. Maybe wearing an oversized trucker hat? Preferably a white kid. It just seem sadder when the kid is white, and it gets more votes that way too.
Posted by Jo | October 17, 2012 6:00 AM